I have an implantable cardioverter defibrillator (ICD) for primary prevention of sudden cardiac arrest. I have been fighting for my right to access the data collected by the ICD for about 3 years now, without much success. Data about my heart is regularly collected from the implanted device by its manufacturer over remote monitoring.TEDxCambridge - Hugo Campos fights for the right to open his heart's data
The modern ICD is a sophisticated computer capable of detecting and treating malignant arrhythmias. It is also capable of wireless telemetry, a feature that is used by all device manufacturers for remote patient monitoring. Today, there are about 5 top manufacturers of pacemakers and ICDs and 1MM patients being remotely monitored on a regular basis. Not a single one of these patients is allowed access to their device's data.
I am sure you'd agree that this is an objectionable practice and it must be stopped.
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Saturday, September 29, 2012
Why can't pacemaker users read their own medical data?
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